[Essentially Ours] our daughter update



Hi Everyone,

The things that are happening to my daughter this week are frightening...she was on very high doses of Ibuprfen
for several months for her elhers danlos pain.  This hit her kidneys....then she was sick for a month with vomiting for 5 days at the end of it which further shocked her kidneys and started the failure.  Now weird patches have popped up on her legs over night, something like blood blisters on her feet the next night.  Nerve pinching in her elbow making her left arm numb and ring and pinky finger unable to open...that happened in two days.  They are thinking maybe vasculitis or Lupus. I'm camping in her hospital room of course.....you know how that goes, very little sleep and don't feel like eating...but under threats by family and friends did eat a a little more than yogurt and Ningxia Red today!  My daughter is 27 with a 16 month old baby girl.  
Today her blood was to thin to do the kidney biopsy, her heart is working to hard and the valves are leaking.
She is swollen from fluid retention but is still urinating and a little better today than yesterday though kidney function continues to decline...just not as rapidly as before.
Thank you for thinking of us,
Sara

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